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Teens turn to TikTok in search of a mental health diagnosis (nytimes.com)
111 points by giuliomagnifico on Oct 29, 2022 | hide | past | favorite | 128 comments



My experience has been a mental health diagnosis, even from a professional, has the terrible byproduct of reifying the symptoms of that condition.

It's perfectly possible that the environment that manifests something like social phobia can change, and a person who previously felt uncomfortable doing something can feel again comfortable.

However, if having social anxiety becomes part of your identity, it becomes the lense that you see the world. TikTok makes it easy, but social media as a whole is identity obsessed by its nature, and as the article illustrates is making this problem worse.


This has been my experience, both professionally (I used to teach children at a school which specialises in those who may have some form of diagnosis), and in my personal life with 4 step children, 3 of whom have ASD diagnoses.

For the vast majority who I taught, the diagnosis became their identity, rather than a way to understand their behaviour. Any disagreement with them was answered with "that's because I'm X". I can only recall one who approached it as a way to identify and understand their behaviour and experience of the world, and as a way to deeper understanding.


When my daughter was young, my wife and I were concerned, and we took her to a place that specializes in identifying and working with autistic children. In about thirty minutes of observation, they said she's obviously autistic, and recommended that we begin bringing her for ~20 hours of intervention a week. We decided against it, because we thought it was excessive, and decided we didn't really want autism to be her entire life. Several years later, she's doing very well: good skills for life, good progress in her schoolwork, and good ability to deal with social situations. Yes, she's a little socially awkward, but she puts herself out there anyway, and makes no excuses. (She's aware of the evaluation and after reading a couple books about autism, thinks, yeah, that's probably what's up.)

I know that's an anecdote, but can anyone imagine that she would have gained more from 20 hours per week of being told she has special problems with a special name, and needs professional help to overcome her many, many obstacles? I certainly can't.


this is a reflection on you, not your child. i was diagnosed with an ASD issue. my father was devastated, i can’t be “broken” because he clearly isn’t. i was shown by my fathers actions that my “affliction” wasn’t ok. if i was broken, he was, and that didn’t work for him.

i said what my dad wanted to hear WRT if i had had more classes to cope, “a total waste” i agreed.

in the end i spent half a decade in these classes learning how to understand what the other person is trying to say, not what their actions and subtext scream out. i did this as an adult, against my father thinking it was needed.

after five years i can finally manage my emotions well enough and with enough expertise that it no longer causes me to loose friends and ostracize coworkers.

think about the impact that your clear disdain for the “condition” and down playing of the value if the courses. imagine your daughter not “still struggling” and instead “able to deal with emotions in a non familial situation”.

your fear is harming your perspective


The parent post wasn't suggesting that she didn't have a problem, but rather that the suggested treatment by an organization whose sole purpose is to identify and treat these cases was not appropriate for her circumstances. They've essentially got a vested interest in over-diagnosing, and parent sniffed that out.

It is entirely possible that, had she not improved, parent would have gone back, or found another source of treatment. I didn't see anything at all in the parent's post to indicate that they have a `disdain for the "condition"`.

You might be projecting your own experiences a little too much.


That sounds like you are denying their lived reality, perhaps even “projecting” your golden experience, saying that others can’t find different paths through complex human topics. Your opinion is fine, but denying the opinion of others is not.

Here are two things that I have commonly seen: 1: getting labelled often leads to negative outcomes, in particular when others judge by a person’s label and not the person, and 2: psychologists and counsellors can sometimes create victims, trained codependency, and a variety of very negative outcomes. In this case the OP judged the cost of 20 hours per week of professional help to be high cost/risk, and they tentatively said it seems to be a reasonably good outcome (fantastic - given the diagnosis).

Professional “help” can easily be harmful, and I think you should acknowledge that fact. Of course the opposite can happen when people ignore help, or deny problems, and then hurt themselves or others.

The key point is that there is no golden standard where you can predict if professional help will work, or harm.

PS: https://news.ycombinator.com/newsguidelines.html


> classes learning how to understand what the other person is trying to say, not what their actions and subtext scream out

I know this is a total sidebar: Do you mind sharing a little more about these classes?

Not knowing anything about this, my reaction on reading this was the exact opposite.

As a kid, I was always naively trusting of people's words, and I would expend huge amounts of empathy on trying to understand them based on what they were saying. I feel like a large part of growing up and understanding people is being able to look past that — trust what they do, rather than what they say.


You’re saying these people were able to understand one of the major aspects of their make-up and were able, after years of struggle, to at least give a name to the reason for the struggle they still had to deal with.

They must have had some sense of relief when they got diagnosed. Perhaps they thought they would be given a little bit of a break by those who expected them to act like people who are literally not like them.

Perhaps they found, though, that despite finally being able to show others that they weren’t just lazy, or stupid, or that they didn’t care, or they weren’t interested in paying attention, or they were just being weird, they were still expected to somehow ‘snap out of it’ and be like people who weren’t like them.

After not being able to explain your behaviour for so many years, and then being expected to just somehow ‘identify and understand’ and gain some ‘deeper understanding’ would sound to them exactly like ‘you can just try to stop being yourself now you have a label, right?’

It’s exhausting. Even with - and especially with - those you love and who you see every day, including those who are on the spectrum themselves, there is still a lack of understanding and a pressure to just ‘fix’ yourself, and do so consistently.

No wonder some, as soon as they get a diagnosis, default to saying ‘I did that because I am X’ and don’t want to have to bow and promise to work on themselves so that they can be a better - different - person. They are doing this every day because they feel the weight of society. They don’t need to have those closest to them be the nagging voice of that society.


There is a pervasive theme in this comment that labelling people is an action that helps them. Maybe. In some cases yes.

But it is suspicious generality - there are also a lot of cases where people being labelled is an action that harms them. Especially since all the sciences involving the human mind have long histories of quackery, failure and discrimination to draw on. The results are rarely clear and the goals of the people involved are cloudy.

There is probably some balance between the perspectives here and finding it is the real question here.


This isn’t my field so trying to speak with any authority isn’t possible but amongst my close colleagues we feel that pervasive labelling and the need to name every phase ends up creating in some people ‘tethers’ around which a person’s entire psychological makeup revolves. It’s good to forget sometimes. Ie person goes through bad breakup. Would meet clinical (DSM-V) depression definition. After a year goes and sees a therapist and gets on antidepressants. Begins to feel good. Stays with therapy. The rest of their life is now a pivot point around that breakup. They’re labelled as depressed. Other stuff comes up. In some worlds, maybe that’s necessary. In others, maybe they come good, make lifestyle changes, find happiness again, and don’t have the label or the antidepressants for life.


> a pressure to just ‘fix’ yourself, and do so consistently

Now that's just silly, though. "Fixing yourself" is a ridiculously hard problem even for those who don't have the benefit of a formal diagnosis - the ones anyone would simply dismiss as lazy, stupid, uncaring, weird etc. etc. That's basically what wisdom is. It's not clear that the formal choice of getting a diagnosis is changing anything substantial beyond the picking of an arbitrary label for some known cluster of behaviors, perhaps with varying amounts of personal or social adaptiveness.


A formal diagnosis has helped many people significantly in living their lives. It allows them to get medications and/or support that they need.

It might be useful to actually talk to people who receive these diagnoses. In my personal experience I have seen people benefit greatly from formal diagnoses (even if initially it takes time to make sense of it). But even if there are people who are hurt by a formal diagnosis, their numbers are absolutely demolished in comparison to the numbers of people who would benefit by help for mental health issues but never seek it out.

Complaining about people who might not be responding perfectly to a diagnosis seems like a drastically minor issue relative to people who have undiagnosed mental health issues.


Undiagnosed mental health issues such as being lazy and unmotivated? There's lots of people like that out there. For that matter, the formal mental health field can hardly be said to have a monopoly on soulcraft. Seeking wisdom and striving to improve one's core state of being are practices as old as man himself.


I think we ought to think about these things maybe in a bit of a different perspective.

Why do you think someone would want to be lazy and unmotivated? Wouldn't people prefer to simply be able to accomplish things, being lazy and being unmotivated is very detrimental to one's well-being in today's society.

And from this perspective then maybe you would think: okay, why are these people making everything harder for themselves? Could it be that, maybe, there's something else behind that behavior? Maybe being lazy is a natural trait on some people, in which case, should they be blamed for it?

These are not simple questions. I think dismissing people's struggles is very problematic. I mean, any struggle is worth taking a look at. I think a lot of people don't really understand what it means for someone to be mentally ill because it's not something that is so evident. But I don't think you would ever tell someone that was born without their legs to "stand up and walk like everyone else does, sometimes my legs hurt too, and look at me running a marathon". So why would you do the same for people with mental illness? Why would you assume that laziness and lack of motivation is simply a momentarily ailment?

ADHD and depression are very much real, and we need to take mental illness seriously and a big part of this means not just going "get up and walk like i do" but actually trying to understand another person's struggle.


"being lazy and unmotivated" can be ADHD, anxiety, depression, a stroke, low key narcolepsy or else wise and how you treat them is very, very different as one example.

"lazy and unmotivated" are mental health symptoms, not causes.


As someone who got an ASD diagnosis later in life, this is absolutely spot on.


And as someone who got an ASD and ADHD diagnosis earlier in life (which doctors are now unable to reproduce), this couldn’t be further from being spot on.

So much unnecessary bullshit I had to go through because shrinks were too eager to label me as a kid. In the end my only fault was a general aversion to authority, only further intensified by this experience.


If you're referring to the 'overdiagnosis' (i.e. misdiagnosis) of ASD/ADHD early in life, I completely agree that this shouldn't be happening.

I also wasn't arguing for early diagnosis, as I understand the dangers of this, not simply because it's difficult to get right, but I am worried that handling the label in a useful way does seem like it could be more difficult at a younger stage of development.

I was commenting on what appeared to be an assumption - by the commenter I replied to - that those they had dealt with were lazily (!) using their diagnosis label as some kind of excuse for their behaviour or to avoid challenge.

The original commenter could, of course, be entirely correct, but some of the most difficult aspects of ADHD to deal with are:

Not being believed - the assumption that you're actually just lazy, or otherwise morally defective

Constant pressure to 'get over' your ADHD, never letting it influence your actions (or inaction)

It's difficult to relate how much these two pressures can cause agony within the family - with _or_ without any knowledge or understanding of ADHD, and with or without any diagnosis.

The intent of my comment was to ask for patience and understanding for those affected, not to advocate for or against any position on diagnosis.


This is so true. My friend got a ADHD diagnosis very late in life and it became so much of his fucking identity. Thankfully, he was smart enough to know the dangers of abusing adderall so he took it in moderation. But he refused to listen to my assessment that it was not helping him at all.

The worst part of it was that he was convinced that his academic failures in life were due to his ADHD. Now we are both successful people in general. He's a software engineer in a major company. But since he couldn't figure out some simple math shit that was obvious to me, he thought he was being handicapped by his disorder. He refused to listen to my claim that everyone has a lot of stuff in math they just do by the rules they were taught and only realize later in life that there's an underlying concept. It is kinda the point of our education system because our young brains take more time to grasp the basics so we cram the rules and wait for the rest of cognition to catch up before teaching the basics.

He stopped taking the meds a while ago when he realized it wasn't doing him much good and realized that there's a limit to how smart people get and it is ok to not be born as next Terry Tao or something.


> He refused to listen to my claim that everyone has a lot of stuff in math they just do by the rules they were taught and only realize later in life that there's an underlying concept.

You're probably misinterpreting "refusal" as "unable". After a lifetime of being told "if you would just apply yourself...", you start to get a distorted impression on what the average experience is. Obviously, he's just coming to understand something that everyone else had appreciated since they first learned it, because they applied themselves.

Maybe I'm projecting -- I'm in a similar spot, but I've been diagnosed since high school, and it wasn't exactly a shocker then.

What you're describing really sounds like the secondary depression[0] that usually comes with adhd. That is, he's probably is being handicapped by the disorder -- it can be a real slog to read math, and very hard to practice it, even when it's interesting. But it sounds like you were coming face to face with depression caused by a lifetime of not feeling good enough. Frustration that you can't apply yourself harder. Being gaslit into believing that you weren't trying.


I have the same issues with being told to apply myself. It's a common story for people in the 95-99th percentile regardless of whether or not there is an ailment holding them back. I am not trying to reduce what people are going through, but I just think this is not the point of variation. Maybe experiences around not being able to earn money at work due to concentration issues are a bigger differentiator (I don't know).

But I understand why people have an achilles heel about certain aspects of their life that they have been scolded about constantly. I have those issues too but in certain areas I overcame them entirely like in academics.


So what is an identity if not “a way to understand their behaviour and experience of the world”? I think the problem the GP raises is inherent in the whole diagnosis concept, and that it’s generally a bad idea to label large parts of the personality spectrum as some kind of (incurable) illness.


Not the gp, but I think the difference lies in mindset. There’s the “victim” mindset where you know the diagnosis and it becomes a convenient scapegoat for your symptoms. “I can’t do that because I’m X.” You see yourself as unable to escape the diagnosis and enter a state of learned helplessness.

The desired outcome is an enlightenment mindset. “Ah, so that’s why I act that way. Well now that I know that and have x, y and z methods for addressing it, I can overcome/adapt”. As you can imagine it’s a lot more work to achieve this mindset.


Now combine this with the 21st century "victim industrial complex" and we have a recipe for disaster.

Actually, I do wonder. Are these independant variables, or is the search for victimhood driving the "mental illness" trend?


I don’t know… I think it’s kind of unfair to lay this on people who are already struggling, when it’s quite clear that most healthy adults are unable to adapt that mindset when it comes to (other’s) psychiatric diagnoses…


I can empathize with your position, and it would be nice if there was a way to help from the “outside”. But the truth is that the only way to make meaningful change is to internalize the change and do it yourself.

I say this not as some sort of holier than thou proclamation. I struggle with this daily myself. Posting on hacker news helps reinforce what I should do to help myself :)


> There’s the “victim” mindset where you know the diagnosis and it becomes a convenient scapegoat for your symptoms.

Spend some time to think about that sentence. The diagnosis is not a "scapegoat", it's literally an explanation for the symptoms.

Why should they have to try to "escape" the diagnosis?


I fear that exposing teens to self educating on too personal and too complex topics is gonna backfire. They're extremely quick to accept theories and blend in with it to make it an instant reality.

ps: not helped by online groups or bubbles (twitter, discord) where they can all reinforce their own beliefs in a joyful mayhem.


tl;dr: get yourself a therapist who understands that the most important questions for you w/r/t to your mental and emotional well-being are not whether you ‘really have’ social anxiety, or whether autism ‘really is’ just a disorder, or whatever.

> However, if having social anxiety becomes part of your identity, it becomes the lense that you see the world. TikTok makes it easy, but social media as a whole is identity obsessed by its nature,

I think this is as much a feature of that stage of personal development as it is of social media. Adolescence and early adulthood are periods in life when there's naturally a lot of focus on identity formation. I think the issue with diagnosis being taken as identity formation comes out of that background more than it does the nature of social media or out of medical diagnoses themselves.

It also (imo) comes from a scientistic approach to psychology: it starts with the premise that the diagnostic categories one finds in diagnostic manuals all correspond to real conditions in the world (realism) which divide the population into kinds of people (essentialism). But that forgets the purpose of those diagnostic manuals and their contents (to help mental health clinicians guide treatment plans) and the nature of the science and clinical practice here, which is driven almost exclusively using hypothetical entities we can't directly observe. The DSM's purpose is not to provide an ontology, or to identify essential features of the human mind, and certainly not to do so in a way with any kind of finality.

The other thing to think about is the kind of profound validation and relief that can come with gaining a ‘label’ for one's struggles, a framework for thinking about them, and references to communities where you can learn from other people dealing with the same things. That is huge, and it's really important to a lot of people when they first get diagnosed (whether with mental health or a chronic physical condition, for that matter). And it's natural for that to push one to see their diagnosis or the label associated with it as defining part of who they are.

That said, there are psychologists and psychiatrists who are also troubled by this, who are critical of ontologizing or essentializing approaches to their own fields. Go in with an attitude that you're looking for labels that are useful regardless of whether they're true, with an understanding that mental health exists not just in the patient but in their social relations to the whole of their society, that our diagnostic categories in 10 or 50 or 100 years will likely be quite different from the ones we have now, that many conditions with similar symptoms may be related or distinct in ways we don't yet understand, that as you work on things you might shed just enough symptoms of this or that thing to go from qualifying for diagnosis to no longer qualifying (despite the clear continuity in who you are, your personality and traits, etc.) and so on. You can find therapists who are comfortable taking an anti-realist, anti-essentialist approach which resists that mental habit of reification.


Your comment is really interesting and I went over it a few times. What does therapy by an anti-realist/anti-essentialist therapist look like? Or what is the practical difference?


Not the parent, and I don't know about therapists, but criticism of the "mental illness" model is pretty widespread. You'll come across those arguments if you review scholarly criticism of the DSM-5, for example the British Psychological Society: https://web.archive.org/web/20160417085743/http://apps.bps.o...

The two-continua model is somewhat distinct but related. It doesn't argue that the diagnosis categories are flawed, but that they miss a large part of the picture. See: https://search.informit.org/doi/pdf/10.3316/informit.2614206... https://link.springer.com/article/10.1007/s10804-009-9082-y https://psycnet.apa.org/doiLanding?doi=10.1037%2F0022-006X.7...


Thank you!


I have seen this first hand with a (non-teenager) family member. They self-diagnosed with ADHD over the past two years.

Then they paid to get a private assessment and sure enough got diagnosed with ADHD. Do I think they have ADHD? Nope, not at all.

So why the official diagnosis and treatment with pharmaceuticals? He learnt everything he needed to know to easily fool the doctor assessing him. He knew every test they would use and exactly how to respond. And as he is an intelligent guy he didn't go in there and flag every single thing but just enough to look like a legitimate person struggling with attention and executive function. He told me before the assessment he wants the medication and he got exactly what he wanted.

My son was diagnosed with ADHD a couple of years ago so I have seen first hand how the assessments work and it is a joke how much "flexibility" there is. It isn't like a blood or culture test where you can detect the presence or lack of some substance. It is mostly voodoo for want of a better word.

One question I ask myself is does he genuinely think he has ADHD or did he just want the meds and figured out a way to get them while looking genuine?


Some perspective from someone like your family member. ~2 years ago I self-diagnosed with ADHD and paid for a private assessment. I learnt everything about it before being assessed and therefore knew exactly how to respond, and was put on a prescription for methylphenidate.

The reason I went looking for the diagnosis was 10+ years of utter misery. I had been on various treatments for depression & anxiety, but found them minimally effective. I was getting by but was pretty apathetic about life. Over the years I'd investigated various other mental illnesses, but never came across one that seemed to fit me. I came across ADHD purely by chance, when an acquaintance was diagnosed and I looked it up. Previously I had probably ignored it assuming that it was just for hyperactive kids.

This one did seem to fit, and frankly I was desperate. The though of a pill that could actually fix some of my issues made it worth a try at the very least.

For the past two years I've been happier than any other time in my life that I can remember. Life was just easier. The most telling point for me was when I realised that I was no longer apathetic about life, I actively wanted to live, I had things that I wanted to do, goals to achieve - and I was actually able to do them.

I don't know if I actually have ADHD, I still question the diagnosis. It worries me sometimes that maybe I don't have it and that instead I'm just not very good at life. The truth is that it doesn't really matter, the diagnosis and treatment worked - If I payed for a placebo I don't really care.

Perhaps your family member is the same - maybe they have ADHD, maybe they just needed something to help them through life, maybe they had run out of alternatives - it just gets to a point where you wonder 'how much does it matter even if I'm wrong?'


Personally, my philosophy is that drugs should be viewed as tools. Now I don't recommend this to anyone else because there are a lot of negatives. Encouraging people to find their solutions in chemicals can be dangerous. For a non-trivial amount of people, though, I think a lot of their life's problems could be solved with responsible and moderate usage of certain drugs. But again-- I don't actually recommend this because most human beings are irresponsible with drugs.


Thank you for that. The fact is that a lot of conditions are on a spectrum, and only the individual can decide whether it's affecting their happiness enough to be A Problem. For example, social anxiety plus executive dysfunction seems to be a super common combination among the students at my local high school. But really, who doesn't have at least a little of both? By identifying their vague "issues" as a specific thing that affects more than just them, people might be able to find a community that can provide support and useful advice, or professional help and perhaps even medication. That's what taxonomy and terminology are for: to be descriptive, not prescriptive, and thereby to understand the world. I've seen it help in far more cases than I've seen it cause harm - though the latter does happen, and it's a thing professionals know to look out for.

Also, gotta say, as much as I hate TikToxic there are even worse places to look for mental health advice. :looks at some of the other threads:


ADHD is a different pattern of brain function than a 'normal' brain, and generally detect-ably so. ADHD medications, and particularly the stimulants, have a very different effect on someone with ADHD versus without. Assuming the medication is successful, properly dosed, and without side-effects, a person with ADHD will report an experience a lot like yours, and a person without ADHD taking it will have mood swings, hyperactivity, loss of appetite, etc. [1]

I'm paraphrasing from "Taking Charge of Adult ADHD" which I highly recommend. Unfortunately I don't have it on hand so its not a very good paraphrase.

[1] https://www.seasidepalmbeach.com/addiction-blog/what-does-ri...


This is oft-recited but never backed up with evidence.

The linked article, for example, is unsourced and undoubtedly biased (as an addiction treatment center).


there is plenty of evidence that these amphetamines show very different effects in ADHD vs non ADHD individuals.

this is my first google hit for the search phrase "methylphenidate in non adhd vs adhd"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3489818/

this is referencing several clinical studies in that vein.

and the search result has several more results, some just clinics which make the well founded claim in simpler terms, others more clinical papers.

I'm sure you find more going to Google scholar with your search.


We still don't have a super strong idea of exactly what is going on but we know that it has to do with dopamine and norepinephrine and that a number of brain structures are noticeably different in people with ADHD.

https://en.wikipedia.org/wiki/Attention_deficit_hyperactivit...

it's actually kind of hard to find an array of good medical sources googling for the second claim because there is so much anti-abuse stuff flooding results for a non-medical professional like me, but its somewhat intuitive in that raising dopamine levels from low to normal will have a different perceived effect than raising them from normal to high. There is perhaps a philosophical argument to be had but from a clinical standpoint my understanding is that there is a world of difference in the outcomes.


Have you ever heard of implicit bias? Bias is unavoidable.


I’m in this exact same boat right now, word for word, other than I haven’t had the assessment yet (very soon though).

I’m quite literally desperate for any answers at this point, my teen years and 20s were on the whole, an absurd nightmare.

The only thing that worries me is they’ll tell me I have it because that’s the easy thing to do. I don’t want a diagnosis unless they’re 100% sure and I worry that paying for the assessment will bias the outcome.


I will add then that while the meds have been very effective, equally helpful was accepting the diagnosis. It made it easier for me to accept some of my failings and forgive myself for them.

And secondly just to say that things definitely can get better (which I found very hard to be believe for a very long time, no matter how many people would say it)

Whatever happens, best of luck to you!


I'm certainly at a point where I no longer think things will get better and well I'm skeptical of the entire psychiatry industry, even the slightest chance is worth taking at this point.

Thanks for the well wishes, I really hope in a few months from now I can look back and see some progress.


I would recommend you check out "Taking Charge of Adult ADHD" by Russell Barkley. [1] It covers a lot of topics and dispels a ton of misconceptions about adult ADHD. On top of that one of the stated goals in the synopsis is "how to get an accurate evaluation"

[1] https://www.amazon.com/Taking-Charge-Adult-ADHD-Second/dp/14...


If you’re looking for a comprehensive, accurate diagnosis you’ll want to find a good neuropsychologist. They aren’t cheap, but if you find a good one they can really help you uncover specific issues.


> ... was put on a prescription for methylphenidate .... If I payed for a placebo I don't really care.

What do you mean? Methylphenidate is not a placebo no matter how you look at it.


Fair - it would be more accurate to say "If I paid for treatment and it's effective then I don't care whether it's treating ADHD or some other issue - or if it's treating nothing but I have the impression that it is"

i.e. The outcome is important to me regardless of the how and why.

I wonder if there's a term for that? Feels like there must be.


My mother took me to a extremely expensive child psychologist as a child. I don't recall what she said exactly, but I think she inadvertently suggested that she "thought something was wrong". The diagnosis came, my mother ignored it, and I don't have whatever he said I had twenty years or so later (not a total waste of money, he did an IQ test, and a color blindness test, hard to fuck that up).

It is an industry. At the time this happened, wealthier parents were often taking their kids to these people so they would give a diagnosis for extra time on school exams (this is presumably why he diagnosed me with something, iirc my mum told him he was wrong, he said "what do you want me to do?"). Obviously, the medication is an incentive for some kids now too. And the industry does affect how people cope, everything is medicalised and diagnosed, that isn't very helpful. The fact that kids have so much knowledge is also impacting diagnoses because they know what to say (and their parents are concerned too, and maybe say "I think you have this" and they want to validate that).

Unfortunately, I don't think anyone is really getting helped. More resources are going towards the trendy stuff, normal emotion is getting "diagnosed", and it is the same old stuff if you actually have something wrong with you (unemployment rates for people with autism are 80%, "mental health awareness").


People who have nothing wrong don't seek out labels and treatment. If he identified so strongly with the ADHD things being put out there (the vast majority of which at least rhyme with the official diagnostic criteria) that he paid for an assessment that came back positive* then it might be best to believe him.

* I paid for an assessment from a neuropsychologist that came back negative. I dug into their assessment and it was basically just wrong (self contradicting and extremely biased, I.e. I was "too smart" to have it). I went to someone else and they picked up on it immediately.


> People who have nothing wrong don't seek out labels and treatment.

Agreed, I do think there is something wrong I am just not convinced it is ADHD and my worry is now he has his diagnosis and some pills it won't help him in getting him the help he actually needs which I believe is more related to trauma from an animal attack combined with the pandemic.

I know it sounds like I am just disagreeing with his ADHD diagnosis and that I am in some way against ADHD diagnosis but that is not the case at all. As I said my son was diagnosed with ADHD not too long ago. I have no issue with ADHD as a diagnosis I just worry it is the wrong one for this person because they became so obsessed with getting adderall as some kind of fix for everything and when other options such as therapy are suggested they dismiss them instantly as "too much talking".


> I know it sounds like I am just disagreeing with his ADHD diagnosis and that I am in some way against ADHD diagnosis but that is not the case at all. As I said my son was diagnosed with ADHD not too long ago. I have no issue with ADHD as a diagnosis I just worry it is the wrong one for this person because they became so obsessed with getting adderall as some kind of fix for everything

That is really hard. Your son may have to figure that one out on his own.

If I can give some unsolicited advice:

Make sure your son knows that you feel his problems are real and that he has important things to learn from others who have ADHD, because they do struggle with so many similar things. If it's ‘you're barking up the wrong tree’, he might be likely to reflexively dismiss you. But if it's ‘I see why you think this is a good place to look for help, but don't limit your search for tools to deal with this to things associated with ADHD’, it might be something he can better receive.

Also, as someone who has been diagnosed with ADHD and takes stimulant medication for it:

  - there are aspects of ADHD that stimulant medication just doesn't help with
  - there are aspects of ADHD that stimulant medication can make *worse*, if you're not careful
  - ADHD can be closely related to anxiety, even when ADHD is almost certainly part of the picture— when you have ADHD traits and behaviors, it's natural to fall into a habit of *leaning into those ADHD traits and behaviors* in order to cope with your anxiety, as a form of avoidance
Even if your son is certain that he has ADHD and he is basically right, that doesn't mean that his trauma doesn't matter or that there's not an interplay between his trauma and his ADHD. He'll be more successful in treating his ADHD if he also addresses his trauma, and working with a therapist can really help for the aspects of ADHD where stimiulant medication is not always that helpful a tool.


That is a very thoughtful reply pxc, thank you.

Perhaps I am wrong but reading your reply I got the impression you thought I was talking about my son in my original reply? I just wanted to clarify that is not the case, I was talking about an adult family member not my son :)

As for my son it is quite clear he has ADHD and I indeed support him in every way I can. Currently that is not via medication however not because I object to it but because he only has one kidney and all of the doctors we have seen agree that we should try to avoid medication for now. Especially as he does not present hyperactivity. I am sure it is something he will try when older but for now we are trying to help develop tools (both mental and physical) to provide a supportive environment for him and it seems to be working quite well.

Regarding you point on anxiety and ADHD, this is very relevant to my son as he has developed some anxiety over the past few years (moving to a country where he had to learn a new language and of course the pandemic). We certainly notice[d] an increase with inattention when he is anxious. For example when my wife had to travel for work recently his anxiety was much higher. As you mentioned I ensure I do not use dismissive terms when he talks to me about how he is feeling. We have built a good, open way of communicating so when he feels anxious or overwhelmed he knows he can talk to us without issue.

I have to admit I have huge anxieties of my own as to whether I am doing a good job in supporting him but I am trying to do everything I can. Again I appreciate you taking the time to share your experience and knowledge.


Oh yes, looks like I mixed up two people you were talking about. Sorry for that! I'm glad that some of what I had to say was still helpful.

> As for my son it is quite clear he has ADHD and I indeed support him in every way I can. Currently that is not via medication however not because I object to it but because he only has one kidney[.] [...] [F]or now we are trying to help develop tools (both mental and physical) to provide a supportive environment for him and it seems to be working quite well.

FWIW I think the non-medical tools are the harder things to get going and the more essential. And because stimulant medication's efficacy is affected a lot by how structured the environment is, it tends to be a less decisive tool in college and in professional life than it is in elementary school or high school. So if you're having success and seeing progress without meds, I think that's likely to continue and to help make sure he has the right habits to make the meds actually effective for him in adulthood if that's what he needs.

> I have to admit I have huge anxieties of my own as to whether I am doing a good job in supporting him but I am trying to do everything I can.

To me you sound thoughtful, flexible, and caring in your approach to understanding and supporting your son. I think that is sure to make a huge, positive difference, no matter what.


>Agreed, I do think there is something wrong I am just not convinced it is ADHD and my worry is now he has his diagnosis and some pills it won't help him in getting him the help he actually needs which I believe is more related to trauma from an animal attack combined with the pandemic.

I think the problem that most people in life that suffer from some sort of mental problem – be it depression, ADHD, Autism, axiety or any number of other issues – encounter throughout their entire life are hundreds of well meaning and otherwise people all with their own personal opinions about what's wrong with them. At best these people are doing nothing but adding noise, but at worst they're contributing to a life of hurt and unhappiness with being unable to be "normal". When these people find something that resonates with what's going on, they will latch onto that thing, whether or not it's the right thing. But for those people (and frankly for their well being) if it's wrong, that's often still better than having nothing at all.

The curse of having a mental disorder is that until you're diagnosed, no one believes anything is wrong with you they just think you're an asshole. After you're diagnosed, EVERYTHING in your life gets filtered through that disorder. But the important thing is people no longer think you're an asshole, which means they're more open to looking at something else.

Your friend has a much better chance of getting the help they need by someone looking at their diagnosis and going "hey, I can see where the docs got this, but these other things don't quite fit and maybe you've been mis-diagnosed or have some other thing" than they probably ever did before the diagnosis. So sometimes even the wrong diagnosis is helpful.

But you need to keep in mind that you're almost certainly not the only other person telling them the diagnosis must be wrong. And at a certain point when you know something is wrong with you and everyone keeps shooting down things around you, you become resistant to listening to ANYONE who wants to shoot you down, no matter how right. If you're worried about your friend, your best bet is to encourage them to keep digging, keep learning and keep checking rather than trying to encourage them to stop thinking they have ADHD. Because in the end, continued evaluation will either confirm the diagnosis or get them on a path to finding a better answer. Where as fighting them on it will just encourage tuning you out and digging in.


That's fair. The question is, are the meds helping? People with ADHD react very differently to stimulants than people who don't, to the point where it's usually apparent to others.


“For years, it was assumed that stimulants had paradoxical calming effects in ADHD patients, [while] stimulating ‘normal’ individuals … It is now known that low doses of stimulants focus attention and improve executive function in both normal and ADHD subjects.” https://www.nature.com/articles/1301164


This old myth about ADHD is one of my pet peeves. Stimulant medications don't un-ADHD people. They're a handicap that has similar effects across the whole population, but which is considered highly dangerous and addictive, and for that reason, we only allow its use when we've identified a significant disability in the form of ADHD.

But it's not a magic drug which undoes ADHD and has completely different effects on the non-ADHD population.


I have high hopes for the potential of low psychedelic doses aiding with ADHD, and even higher doses of certain ones from time to time. Psychedelics have stimulant properties, but much less addiction potential than actual stimulants (when was the last time you saw someone physically addicted to LSD or psilocybin mushrooms?). I had an intense DMT experience three years ago and still feel benefits and positive change from it (although it's about time I arrange another such experience).


> The question is, are the meds helping?

According to him yes, he can concentrate well now. He doesn't talk about his other issues and when I bring them up he doesn't say anything.

According to his wife yes his concentration is improved but not his anxiety, depression or anhedonia.


Not quite, a lot of people earn extra cash doing this and selling their Rx on the street.


I've done the same to get RX to get through a particularly crazy college semester vs buying "focus meds" on the street at crazy markup, a long time ago. It was easy to figure out what the doc needs to hear from some light internet research and I even had calibrated my responses to get the drug of choice. Cost was pennies on the dollar with insurance.

The doc would encourage moving up to powerful doses in follow ups, even though I was barely taking the initial dose... I've since learned these professional drug peddlers often thrive on pushing habit forming drugs that require routine office visit to get a fix (refill).


Slightly off-topic side-thread, but just a heads-up: anyone who might ever want to become an airplane pilot (even in little Cessnas) would want to avoid this whole "study up on the symptoms and go diagnosis shopping" business. The FAA still considers ADD, ADHD and other mental disorders disqualifying, and you will never get a medical certificate with a diagnosis, even if you are being treated for it.


This is not remotely correct. What is correct is that you can't fly with a current ADHD diagnosis or after having recently taken ADHD medication.

If you've had a diagnosis in the past, you need to be off the medication for at least 90 days and go through an evaluation and drug test as well as submit some extra documentation to show that you have been able to function since stopping treatment (or in general if you never received medication).

Given the prevalence of ADHD diagnoses where the individual ends up being able to function without medication, most organisations have protocols carved out to allow prior and even currently diagnosed individuals the ability to join/get certified provided you can get off medication.

Another commonly cited reason to avoid a diagnosis is commissioning in any of the military branches as an officer. You can still get a med waiver to commission as long as you show proof you've been off meds for a year.

Source:

https://www.faa.gov/about/office_org/headquarters_offices/av...


Given my experience with ADHD, I'd assume that if you have a person who has ADHD, and for whom flight is one of their interests, that you would want them to have that ability to notice things with almost cat-like reflexes (which is one of the benefits I have personally experienced, on multiple occasions I have noticed an object start falling off a shelf and reached over to catch it mid-air). The stimulant medications tend to lessen these abilities. I want my pilot to be able to notice aberrations quickly and be able to respond to them quickly.


Jeez, I'm -remotely- correct as it was a 2-sentence summary of complex government rules. Relax. Your details are absolutely correct, but what an "Ackshually" comment!


I very much appreciated the nuance of the detailing clarification.

the "never" makes it sound like "never will you ever", not like "while you have symptoms and need treatment for..."


it'll be trivial to get a diagnosis stating you don't have ADHD, just by using the same "diagnosis shopping" method. The FAA can't stop a motivated person from becoming an airplane pilot.


The mind and body can manufacture so many things in general too. If you think you have ADHD(along with any other medical thing) it might just come to be in certain situations. Not saying it's a lot or anything, but could happen. When I was younger I would watch a pharmaceutical commercial and swear I had that disease. In fact I'm not sure why we don't ban those.


Do the meds help him?

I do understand what you're getting at, but tests and assessments will always be gamed by some people. Yes, he may have cheated, but until there is a more objective way to diagnose disorders like ADHD, something like this is simply part of the whole thing.

Consider him a false positive. You certainly wouldn't prefer having false negatives instead.


He has been on them two months and while his concentration is better (according to him) none of his other issues have changed for better or worse afaik (anxiety etc).

I should note he never had any concentration problems before 2020 and even he agrees with this.

I replied to another comment with additional details you may be interested in.


Can I just put it out there how wild it is that so many people immediately assume people get ADHD diagnosis’s because they want to recreationally take stimulants rather than like, they have an issue they want treated.

It’s a lot easier, and to an extent cheaper, to purchase black market drugs. Yet people are always sceptical when people say they have an ADHD diagnosis, as if they’re just a meth fiend who wants a socially accepted reason to get high all day.

This line of thinking falls apart pretty quickly once you realise that ADHD isn’t socially accepted, as demonstrated by these kinds of comments you get whenever someone talks about it.


A third option is that he does have ADHD and you, a bystander, are doing the misdiagnosis.

IMO for disorders like this it’s almost better to view it through the lens of the available treatments. Is the treatment, on net and relative to other possible strategies, going to be a positive impact on this person? If yes, then whether they have apparent Disorder X (a figment of imagination) versus actual Disorder X (which is itself also a figment of our collective imagination) isn’t super relevant. Obviously in the case of ADHD the prescription drugs are pretty intense and have pretty severe negative consequences, so this framework in that case would probably even yield that people with actual ADHD but mild forms shouldn’t have those drugs pushed on them either.


> A third option is that he does have ADHD and you, a bystander, are doing the misdiagnosis.

Very possible. To me it is just very suspect given my near 30 years of knowing them and other events in their life not long before all of this started.

They have never presented any ADHD traits until recently when suddenly they went from 0 to 100. From being a successful engineer to being unable to concentrate on a crossword.

My personal opinion is they have untreated PTSD following a violent animal attack in early 2020 that caused life-long damage to their dominant hand. This in turn led to them suffering panic attacks around animals, anxiety due to the Covid lockdowns making treatment/physio complicated, furlough leading to isolation at home and being unable to do many of their hobbies from the physical injury (unable to play video games, the guitar, drums, etc)

Tangentially related but they have a history of drug misuse and when I asked if they just wanted the medication their response was "Absolutely". I have mentioned seeking therapy as I suspected PTSD (I myself have C-PTSD from childhood abuse) but he made it clear he has no interest in therapy and just wants the medication which to me is not a great sign.

Of course I could be wrong but I know him well and my worry is they will happily throw medication at him which will do nothing to help him deal with what I believe are the actual issues he is suffering from.


> My personal opinion is they have untreated PTSD following a violent animal attack in early 2020 that caused life-long damage to their dominant hand. This in turn led to them suffering panic attacks around animals, anxiety due to the Covid lockdowns making treatment/physio complicated, furlough leading to isolation at home and being unable to do many of their hobbies from the physical injury (unable to play video games, the guitar, drums, etc)

You answered your question. I was diagnosed later in life, as a successful engineer. I am not and never was at the "unable to concentrate on a crossword" level, but you seem to have some misunderstanding about what ADHD is. It is not the inability to concentrate on things. It is the inability to concentrate on _appropriate_ things. It's perfectly possible for them to just be completely disinterested in the crossword, yet able to be engrossed for hours in something which interests them. The medication levels this out so you are able to keep your attention on mundane tasks and complete them after the "interesting" part is over, or to start on mundane tasks at all instead of procrastinating until it's do-or-die.

Fundamentally, there's a strong intersection with the dopamine reward system, and a "history of drug misuse" and poor impulse control is completely in line with a diagnosis.

Personally, I went through a close family member's suicide, followed rapidly by moving across the country to an isolated town where my spouse developed a problem with alcohol, a couple years of abuse, a divorce, another move to a different area of the country, then all of the lockdown stuff. All of my (and their) unconsciously constructed support structures, reward activities, and safety nets evaporated. Stop.


> but you seem to have some misunderstanding about what ADHD is. It is not the inability to concentrate on things. It is the inability to concentrate on _appropriate_ things.

I appreciate you taking the time to reply and clarify things but I would like to say I have a pretty good understanding of ADHD. As I have mentioned my son was diagnosed with ADHD a couple of years ago. I go with him to every appointment and support groups we are in. I have spent dozens of hours with his doctor, psychologists, etc. to try and learn as much as possible about ADHD to support him as best I can and to ensure I can get the support he needs in school.

My comment about the other family member not being able to concentrate on a crossword was more a summation of the issue not a specific example. He has always been an intelligent guy, he wasn't gifted nor did he need to push himself extra hard to succeed. He never had issues concentrating on "boring" tasks for all the time I have known him (30+ years at this point). Sure he was never super engaged with them (who would be?) but he didn't get lost in procrastination.

What I mean is these are all very new things for him. Even for things he used to love such as games he cannot find the "mental energy" (as he puts it) to play. To begin with I put this down to his injury and while his hand will never be as good as it was he can use it "fine" for such things now. He just has no interest. No interest in anything. Basically all he wants to do is just sit on the computer and mindlessly consume. He stopped coding, stopped playing games, stopped reading, not taking his drone out, stopped doing some 3D stuff in Blender, stopped watching the kind of shows he used to love, etc. Pretty much the only thing he does still do that he did before is go to gigs. And perhaps this is unfair of me but I suspect that is because he always takes some drugs while there.

What I mean is he had a large change in personality over the past two years since the attack, not just his executive functioning.

Now it is very possible he always had ADHD but like many he managed to cope with it via systems he developed and perhaps the attack (or the pandemic) caused those systems to fail him and maybe just medication will help him. My worry is that he has some other issues and for one reason or another he convinced himself it is ADHD and only ADHD.

This is a concern his wife also shares and we have discussed. When she has suggested therapy he dismisses it as "not something that works for him" (even though he has never actually had any to validate that claim). It is a tricky subject and he is now sure he is "fixed" as his concentration is indeed better as he is taking some kind of amphetamine 4 times a day, however his wife has told me there is no improvement in any other areas which she is worried will lead to a crash at some point.


I understand that, but adult ADHD and childhood ADHD are very different.

The energy level in childhood, brain development, behavioral expectations in school, and everything else is very different. I'm old enough that ADD (now ADHD) wasn't really a thing when I was growing up. People had to learn to manage, without medication. Doing it with medication is different, but being a functioning adult is not the same, and the same knowledge should not applied.

Everything you are saying is from an outside point of view. He sounds depressed, but he went through a traumatic incident. That doesn't mean he cannot have both.

It's not even a little surprising that he had a change in personality. You sound extremely judgmental, to be honest. Your friend went through trauma. He may not have PTSD (that word is used a bit too freely these days), but it was a traumatic experience which sounds like it literally crippled his ability to do half of the things your'e saying he doesn't "want" to do.

He suffered "life long damage to his dominant hand". The hand he presumably uses to help fly the drone, to play music, to use the controller playing games, to use the mouse in Blender (maybe). It may be painful constantly, especially if the rehab/physio was hard to manage during lockdown. You would also have a "large change in personality".

There isn't a lot of psychiatric care which can be done in isolation. People who have ADHD/ASD are also more likely to be depressed, but you can't "root cause" this to a single issue, and saying "well, he's depressed/has trauma, so he should deal with that" doesn't mean he does not also have ADHD.

He is trying to tell himself to "fake it until he makes it" after a traumatic experience, and he does not want to relive the trauma in therapy, he does not want to risk whatever potential side effects from antidepressants.

He is trying to accept that this is his life now. This life of lifelong damage in his dominant hand which has forever put the thing he loves out of his reach, and _maybe_ dragging him out of the house to do new things would introduce him to something new he loves which does not remind him of the life he cannot have anymore. _Maybe_ doing that instead of gossiping with his wife about it and wondering why he no longer does his old hobbies would help.

It sounds as if he is living in limbo between a life he lost and finding new fulfillment. The thing about very traumatic experiences as an adult is that the medication he is currently on (and again, which he probably needs) has made his life somewhat bearable again. He doesn't sound happy, and he doesn't sound like he knows what will make him happy, but the current state of things is so much better than it was two years ago that he doesn't think it's bad, or he worries that making more changes would make it worse again.

Be your friend's friend instead of whatever you're doing now. Monday morning psychiatrist on HackerNews is definitely not.


I just wanted to clear a few points up. This person is not just a friend they are family. I have known them since they were born while I was a child. We grew up together and have always been very close.

He and his wife are childhood sweet hearts, they have been together since they were teenagers. I have known his wife since they first started dating so more than 15 years now. His wife and I are not "gossiping" about him behind his back as you put it. We are concerned for him and worry he is fixating on one possible problem while dismissing outright every other possibility.

One thing I would like to clarify a bit is when you say "forever put the thing he loves out of his reach", this is not true. While he may never play the guitar quite as well as he used to he can still play, far better than anyone else I know personally. When I said life long damage to his dominant hand I was referring more to visual scars than anything else. He did struggle for about a year but he is perfectly able to play the guitar and use his hand much as before. Perhaps not quite as good as before but it is not like he lost his hand or it was horrifically damaged to the point it is useless.

Unfortunately I am unable to edit my previous comment. When I wrote "unable to do many of their hobbies from the physical injury (unable to play video games, the guitar, drums, etc)" I meant they were unable to do those hobbies at the time (i.e. in the 6-12 months post injury) due to them being in recovery not that they were permanently unable to do those hobbies for the rest of their life.

>Be your friend's friend instead of whatever you're doing now.

We are all trying to be there for them. Me, his brother, his wife, his parents. We're all worried about him and while I may come across as being judgemental I promise you that is not the case.


> I just wanted to clear a few points up. This person is not just a friend they are family. I have known them since they were born while I was a child. We grew up together and have always been very close.

How many of those years have you been a mental health professional?

> We are all trying to be there for them. Me, his brother, his wife, his parents. We're all worried about him and while I may come across as being judgemental I promise you that is not the case.

No, you're on the internet invalidating his diagnosis.


> he does not want to relive the trauma in therapy

AIUI, therapy is not really about "reliving trauma". It certainly sounds like this person could benefit from assistance by a professional wrt. managing his stress reactions. Medication is a crutch.


> Medication is a crutch.

The only people I've ever known to have said this, were not qualified therapists, councillors, or psychologists. Isn't that interesting?


> Tangentially related but they have a history of drug misuse

There might be a tighter correlation than it seems. What makes drugs addictive is that they work on the dopamine pathways. ADD medications do this directly.

Drug abuse causes damaged memory and executive function because drug use downregulates and sometimes damages dopamine receptors.

> Thus, in addition to reward, addicted individuals can experience severe disruptions in learning (memory, conditioning, habituation), executive function (impulse inhibition, decision making, delayed gratification), cognitive awareness (interoception) and even emotional (mood and stress reactivity) functions.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2948245/


I have ADHD and my flavor makes me look well adjusted on the outside while struggling hard. My mother completely dismissed the possibility of ADHD based on things like me getting a Master's degree. People see the decent grades, but don't see that you put in three times the effort.

Everything got much easier after getting the diagnosis and medication as a 33 year old.


> I have ADHD and my flavor makes me look well adjusted on the outside while struggling hard.

This is me. Looking back at my school days, it is very obvious I had ADHD but neither my parents and I, nor my teachers knew such a thing existed to get diagnosed.

In adulthood, others might think I am doing well, but they don't know the constant struggle my life has.

> but don't see that you put in three times the effort.

This is on point. Sure, I am getting my work done, but they don't see how my constant procrastination, zoning out means it takes me 3x the time to get something done, and it makes me feel 24 hours aren't enough to have my life in order.


>Is the treatment, on net and relative to other possible strategies, going to be a positive impact on this person? If yes, then whether they have apparent Disorder X (a figment of imagination) versus actual Disorder X (which is itself also a figment of our collective imagination) isn’t super relevant.

Just about every human being operates better on amphetamines. It increases dopamine and adrenaline, increasing attention span and motivation significantly while decreasing the need for food or rest. Medication simply improving performance is not really a working metric in this case


Very true if you’re counting only the positive effects, in which case it’s not “on net.” There are obviously significant downsides to amphetamines which is why we don’t treat them like caffeine or even vitamins.


The obvious downside to caffeine is pretty much the same: it stops working if you take too much of it too often. Reserve your coffee for special occasions, and it will work as well as any stimulant.


If you don’t see the obvious differences between amphetamine and caffeine, not sure what to tell you.


Mental Health Diagnosis, even by longtime professionals, is notoriously unrealiable. Research keeps finding that it is determined more by the attitude, experience and values (ie. for example religious values) of the person doing the diagnosis.

In practice, the number of clients/patients complaining that their diagnosis was changed something like 10 times, with an ever longer list of ever more serious problems, while treatments don't work, but DO interfere with life. And then there are mandatory treatments that keep being researched as worse than doing nothing.

And, of course, there is the famous study of

https://en.wikipedia.org/wiki/Rosenhan_experiment

And it's more recent, less dramatic, but probably more valid cousin:

https://www.sciencedaily.com/releases/2019/07/190708131152.h...

Add to that that everyone feels capable of making such diagnoses themselves anyway. In every ended relationship these days, it seems, the relationship ended because the woman was schizophrenic and the man nacissist ... or vice versa.

It used to be the case that if a person is "functional", which usually means able to hold down a job for at least a couple of months at a time, they were psychologically healthy.

So why not make mental health diagnoses on tiktok, in bars, in ... everywhere? Yes it's not very valid, but everyone's doing it anyway ... and the official way to do it is not much more valid than doing things that way. This way, hopefully, people can see mental health diagnosis as what it really is: 99% bullshit.


It’s not about the science, it’s about the social structures we’ve built around disability.

Call it bullshit all you want. I can climb on the rooftops and scream “mental health diagnosis is bullshit!” and at the end of the day I still legally have the diagnosis’s I have, I get social and tax benefits from being disabled, people whisper about (correct) rumours of me being disabled, I still belong to the disabled identity group regardless of the scientific validity of grouping us.

I’ve had similar “it’s all bs so why care about self-diagnosis” and there are good reasons. First physical health conditions can be misdiagnosed as developmental disabilities. It fucking alarms me the people with no childhood history of a mental disorder will self-diagnose themselves with it as adults. The second is there are some people who clearly aren’t all right upstairs and there is a risk of diluting resources. I honestly am fatalistic about the issue though and think eventually the mental health status quo will implode


I frequently receive psychiatric evaluations, and every time the doc justifies it to me, she (it is always a woman) she explains it based on my current affect at that time. Like if I am affable and outgoing, I receive a favorable diagnosis, but if I am in a bad mood, sort of standoffish, quiet or retiring, I receive a negative diagnosis.

Also since they are clinical psychiatrists I always 100% encounter them in a clinical setting where I already suffer from "white coat syndrome" so that just factors into the mess.


Sure it can be unreliable cuz we are dealing with the brain which as a system is less understood than a cyclone.

Its natural the pros will get things wrong cause of the complexity and dynamic nature of the issues, but don't kid yourself that your SO or family members or friends or work mates are going to do a better job.

If they have never handled the issue before it's almost guaranteed they will create new issues and then cry about or hide behind their good intdntions after things blow up in their face.


> Its natural the pros will get things wrong cause of the complexity and dynamic nature of the issues, but don't kid yourself that your SO or family members or friends or work mates are going to do a better job.

I would expect "professionals" to do a better job. They don't. Otherwise ... one might point out Kenny Rogers is a professional: he's always been paid for his role (I doubt much acting was involved) in MTV's show "jackass". Being a "pro" means nothing, and certainly does not mean you beat amateurs.

Plus, this is hacker news. In CS most amateurs, by virtue of actually liking what they do and putting in more effort, beat most professionals. Certainly on an individual level.

> If they have never handled the issue before it's almost guaranteed they will create new issues and then cry about or hide behind their good intdntions after things blow up in their face.

This is exactly the behaviour we keep seeing from professionals. Specifically, mental health has nothing remotely like the medical profession's responsibility, they do not accept the consequences of what they do, and they always hide behind their "good" intentions (scare quotes because: pros are by definition paid for their good intentions)

Here's a story of situations mental health "professionals" created: https://elan.school/83-keyed-up

The history of psychology and psychiatry is full of lies, deceit and, more than anything else: abuse. Mostly of underage girls. One might point out:

https://en.wikipedia.org/wiki/The_Freudian_Coverup

What was the best-selling product of dr. Sigmund Freud? I will point out his name is still revered by current psychologists. That product was: testifying in court how girls (and boys, though much less often) wanted to be raped, and thereby caused and carried guilt for being raped. In addition to this he silenced victims ... with violence. Not for free, of course. Also with drugs, therapy, making them doubt themselves, ... whatever he could.

Current psychologists largely still do not see a problem with either his theories (they'll say they're "superseded") or his actions. One can only assume his status as the best earning psychologist ever has something to do with that.

The brain is understood well enough to totally discredit 90% of psychology. It has just never been the intention of psychologists to be accurate. That's literally not what the science entails. They want to change the world for the better. Lying to accomplish that may be a grey zone, but it is quite well accepted this is part of how psychology works. It's like political science. Whether some claim is true or not is, at best, considered secondary to its effect on people. Perhaps not ideal, but let's say useful.

For example, a claim that you will find well supported, but not in psychology is that abused people ... are very likely to abuse others. It's of course a controversial claim, but it's pretty well supported. Psychologists will not accept it. Now this, I guess, can be valid position, because if you want to change the world for the better, then perhaps not accepting this claim is the right thing to do. But none of that has any bearing on the truth of it.


> What was the best-selling product of dr. Sigmund Freud? I will point out his name is still revered by current psychologists.

[citation needed] -- a hobby of mine is watching Psychology and Neuroscience courses on youtube. One from 12 years ago that I rewatched semi-recently, the professor explicitly called out Freud as a fraud, but needed to talk about his one theory anyway.

The only people who give a shit about Freud are laymen, honestly. It's just that we've already had 2 or 3 decades where a lot of publications disproved Freud, nobody gives a shit to do that all over again, and most things that can be said about a guy from 100 years ago, have been said.

> The brain is understood well enough to totally discredit 90% of psychology. It has just never been the intention of psychologists to be accurate.

[citation needed]

In the case of ADHD, neuroscience and neurochemistry feed into and complement Psychology. They aren't all done in a vacuum, and many colleges for... many decades now, have neuroscience courses as mandatory for psychology undergraduates.

> For example, a claim that you will find well supported, but not in psychology is that abused people ... are very likely to abuse others. It's of course a controversial claim, but it's pretty well supported. Psychologists will not accept it.

Err... what? This is taught on Therapy/Counselling 101 courses.


> Otherwise ... one might point out Kenny Rogers is a professional: he's always been paid for his role (I doubt much acting was involved) in MTV's show "jackass"

Are you sure you're referring to the right person? The only "involvement" Kenny Rogers had with Jackass was being portrayed in a MADtv sketch, afaik.


In the late 80s I noticed that I was mentally unwell. One day I went to library and they had some brochures on different forms of mental illnesses. I took one about schizophrenia and matched a symptom or two and assumed I was schizophrenic but I wasn't. I was young and had no guidance. It took over a year for me to realise that I wasn't schizophrenic.

Labels can be useful if you actually understand what they mean but most people have no training to do so. It would be better if we focused on symptoms that negatively impact people's lives than illness labels.


What could go wrong with kids seeming mental health advice on tiktok...

Nothing stupid ever comes out of there.

Besides, kids today are just naturally smarter, just ask one and theyll tell you.


I have 15yo step-daughter and she has self-diagnosed herself through the whole DSM-IV because of TikTok. You have to walk a fine line between listened and supporting and calling BS. Spent thousands on a therapist to convince her otherwise.


Reading a diagnostic criteria doesn’t mean you have done a proper differential. You need to read far more than criteria that became obsolete in 2011 to establish disability.


Let’s ignore TikTok for a second. (This is a US perspective)

The last few years have been very rough. Then Covid came and made it way worse, destroying kids worlds.

Tons of people needed help. But that made everything worse if you tried to find help. At least in my area there weren’t enough psychiatrists and counselors before Covid. After it could be months to get an initial appointment if you could even find someone willing.

And cost is a huge issue. They’re teens. Care and meds are expensive. And many insurance plans don’t help as much as they would for normal issues.

So what are they going to do? Turn to what they know. Online stuff, especially TikTok.

I’m not saying any of this is good. But it seems symptomatic of much more systemic failures.

Isn’t this a bit like complaining homeless people keep sleeping on benches or GoFundMe has too many medical donation requests?


Even as an adult, it’s a challenge. I’ve had to find a new psychiatrist several times due to them retiring or leaving. Getting anything faster than 2 months is impossible. My latest one had to be booked four months in advance.


Back in the day it was much simpler - what ever symptoms you tried googling you'd inevitably end up with a self-diagnose of cancer every time.


I really think this phenomenon is due to just how hard a diagnosis is to get in many countries.

Here in Canada you need a referral from a doctor (hard to get on its own), then you have to wait many months to years to see someone. Alternatively you can go private and spend quite literally thousands of dollars like I have.

Teens may recognize something is wrong, but simply not have access to the systems they need. We don’t want people to self diagnosing, but we as a society don’t enable them to get the help they need, so they turn to social media.


Half of them simply have tiktok addiction, and if they were to uninstall tiktok and go find some real friends instead of following semi-celebrities, the other mental health issues would probably subside too...


I like that this article bookends with the young person finding that the real cause of their symptoms was isolation from their peers. Not that it’s always the case, but, I hope it’s a common cure that more people seek out first


> the real cause of their symptoms was isolation from their peers

But who are their peers? Sometimes having a word for how you are can help you find other people you'll vibe with, even if it's technically a misdiagnosis. I've seen it both with neurodivergence and LGBTQ, with kids who arguably don't even fit the label but find and return great value in those communities anyway. I'm sure people here can appreciate how sometimes results matter more than adherence to inflexible rules laid down in some book.


I completely agree, My mom has been concerned that my teenage step sister and her peers almost all identify as non binary, but it seems like they’ve built a happy high school experience around sharing that. Whether or not they identify as non binary for life seems inconsequential if it serves them now, but I’m kinda excited by the younger generation just being like nah to gender


> My mom has been concerned that my teenage step sister and her peers almost all identify as non binary

No one is "binary". Even the voltage levels inside electronic circuits, that everyone calls binary, are not binary. What's up with this contemporary obsession for seeing everything in pure black-and-white terms and dismissing the power of the rare, mysterious and unknown liminal states of being, acknowledged since time immemorial by countless traditions?


The subject is born and told they are “gender A”, rather than the alternative: “gender B”.

They observe that in the world around them (media, etc.), “gender A” implies X, Y, and Z traits, and “gender B” implies W, R, and T traits.

The subject does not feel they exhibit exclusively X Y and Z traits nor exclusively W R and T traits, but rather some mixture of the two.

The subject then has two options. Reject the worldview claiming A=>XYZ B=>WRT, in flavor of a more dynamic classification scheme; or introduce a new category, C, which maps to their experienced subset of XYZWRT.

I’ve seen no evidence to support one approach being more valid than the other.


The people in the communities believe in a moral right to having self-diagnosis believed. Having a diagnosis is almost considered a form of privilege reserved for wealthy white males, an observation rooted in scientific evidence of systemic under diagnosis for minorities and women.

It is a banable offense from disability communities to doubt somebodies diagnosis. I was told nobody lied about faking a diagnosis, so I faked a diagnosis under extremely suspect circumstances, was believed, revealed my deception, and was permanently banned. Regardless of the morality of my actions, the point is that people want to truly believe that everybody they meet that self-diagnose themselves with disabilities is valid, and anybody who attacks this delusion is an enemy to be expelled from the community, even if such a person is doubtlessly disabled. The way I see it, ideology has become more important for membership in these communities than actually having a disability, because somebody ideologically misaligned is a threat to “safety” or whatever.

I’ve seen people call for moderators to be taken out over “fakeclaiming”. I find the entire ideology espoused in TikTok to be deeply naive and grounded in a false implicit assumption that a label of disability will make peoples lives better and thus to deny them that label is some sort of cruelty. I’ve been in conversations where somebody asks “am I diagnosed”, they will describe something that disqualifies the diagnosis, I point out no they can’t be they don’t fit the criteria, and others in the thread will start saying “oh they must not have meant that they must have meant this” and I’ll just sit there stone cold fucking baffled. I wonder how many people will suffer untreated illnesses because strangers on the internet talked them into thinking they had a developmental disability when they really had hypothyroidism or something because they treat not having a diagnosis like failing to catch a Pokémon.


I see accepting self diagnosis online as a practical measure. Since it is not possible for an online community to ascertain wether someone qualifies for a diagnosis or not, discussing it is entirely unproductive and a wasp's nest. That doesn't mean everyone truly share's the same diagnosis, only that there's nothing to gain by doubting what they're saying.

A lot of people arrive at these communities due to their insecurities and personal pain, and it's not helpful to go around pointing fingers saying "you're not part of this group".

They're support groups, not medical boards.


It's not a matter of simply pointing fingers though, even alluding to there being a general issue is controversial, virtually all opinions other than "We're not experts but you're probably disabled" are wrong. You mention going to doctors, if somebody goes to a doctor, and the doctor says they're disabled people say congratulations, if the doctor says they're not disabled people will criticise and say "bad doctor, doesn't know their job, see another doctor until you find a REAL doctor".

This TikTok thing is a fantastical world where the more visibly and stereotypically disabled you act, and the more diagnosis's you have, the more people give you positive attention. The presumption is though that it would be a terrible burden to impose on somebody to tell them they aren't disabled is what has brought us to the status quo in the article.

My experience is that a lot of the time, being diagnosed doesn't help people, and in fact subjects them to stigma, it does result in reification. I've seen people react to labelling themselves with a disability with significant self-destructive personality changes caused by self-victimisation. Mostly I feel resentful towards the medical system who really caused this nonsense to be inevitable by making people feel nobody will help them unless they apply some unflattering label to themselves first thus making them insurable.


A correct diagnosis will help if it leads to adequate treatment. Sadly, not all diagnosis are correct, and not all treatments are equally effective for a given patient. I agree with your assessment that unhelpful group behaviors are fueled by a failure by the health community in addressing these issues. I would also add that we're facing a societal failure which may lead perfectly healthy individuals to "treat" their pains by exaggerating their idiosyncrasies in order to be accepted in a group that they feel is more protected and understood. And the sad part is that this perception that they will be automatically protected and understood by a diagnosis is largely false, and you're right: a diagnosis can make many things worse. I would trade all "protection and understanding" I got from my diagnosis for the ability to wake up every day and be able to function without pumping meds into my brain.


Still afaik I don’t think it’s effective to mingle in that community. People sometimes need to come to conclusions on their own, and adversial stances usually don’t work, especially if there is a feeling of victimhood or other insecurities playing along. This is especially true online where advocating for A automatically seems to mean you are against B.

The labels aren’t the problem per se, but how we go about treatment, communication and building healthy psyches and ego is.


> The people in the communities believe in a moral right to having self-diagnosis believed. Having a diagnosis is almost considered a form of privilege reserved for wealthy white males, an observation rooted in scientific evidence of systemic under diagnosis for minorities and women.

This, in and of itself, would seem to warrant some sort of mental illness. Victim complex, perhaps?

I had interpreted this trend as something different. Kids wanting to be outliers because being an outlier is cool. Claiming some, realistically debilitating, mental illness makes you special (at least in the "different" sense). This gives lonely teenagers a sense of belonging and something that differentiates them. Most of them could probably be diagnosed with narcissistic personality disorder but I am not doctor. I suppose this isn't new. When I was a kid the kid in class that showed up with a cast was pretty cool for the time they had the cast. Everyone loves an outlier.

As someone who has struggled with a mild-to-medium form of ADHD, only getting a formal diagnosis late in life, I am baffled anyone would want to pretend to have a mental illness. Yet, here we are.


There is a reason why https://www.reddit.com/r/fakedisordercringe/ is a thing.

Teenagers are, by nature, trying to fit in. Because of the internet (and TikTok) they try to find themseves belonging to specific mental/physical disorder groups by faking the symptoms.

People develop the weirdest "alter" systems (faking DID), everyone seems to have self-diagnosed ADHD and depression or is on the autism spectrum. Tourettes is another faker staple.

For many it's just a phase and they figure out who they are (as teens do), but some go down the deep end and actually develop mental issues from faking having mental issues so long... Or it becomes a part of their identity and they find friends in the scene so they need to keep doing it.


> but some go down the deep end and actually develop mental issues from faking having mental issues so long...

Given the number of mental disorder that first show major symptoms in later childhood, early teen years, I sometimes wonder how you would distinguish someone with a "real" disorder, and someone who "faked it til they made it".

I also find it sort of weird how much as a society we're hung up on hunting down fakers. It's oddly pervasive once you start looking around, and I worry that in many cases we're doing more harm than good. Our obsession with finding people that are fakers about pain has led to immense pain and suffering for those that need pain treatment (and like my question above, it's amazing how many "signs of addiction" look exactly like "signs of someone in pain and being un(der)treated. Fears of fakers makes any government assistance program a nightmare to get into, and a nightmare to navigate, never mind the number that are held back.

In the end, I wonder what is worse, for 100 teens to be over diagnosed, to go through life thinking they have a disorder and being medicated when they don't need it, but for 100 other teens to get the help and support they need for real problems. Or for those teens to be untreated. To go through life convinced they're just lazy, or stupid or just not trying hard enough. But at least their normal peers aren't being overmedicated or convinced they have something wrong with them that they don't.

Sure in an ideal world, 100 teens would be treated as they need, and 100 others would not as they don't. But in the real world, it feels like we often lean towards preferring some suffer so that those that might be faking don't get their way. And I'm not convinced that's a good thing.


I think a lot of this stems from how our culture treats diagnosis. There is a strong pressure to conform to normative ways of being, and diagnosis with a "mental illness/disorder" is often the only way for non-normative ways of being to be legitimised and tolerated. Consequently, non-normative individuals will often seek some mental health diagnosis in order to avoid social pressure and judgment.


Could we please keep hackernews free of this mainstream social media madness? I feel like about 50% of people in modern society are insane to the core, consuming whatever next "viral" thing is thrown at them, mindlessly.


Well you're not getting an appointment within the next year here in Canada...


I just need to point out the catastrophic effect of removing downvoting from youtube, and the subsequent proliferation of hoax and sensationalism in healthcare, exercise and psychology video content.


At what age is sensible to bring a kid for a diagnose on autism? I mean, I was told to bring in my 3 y old, but I find the risk of false positive is just too high.


The leads to an obvious question:

Are there other mental health issues being spurred on by TikTok? If so, which ones?

And then the followup:

Is it more beneficial to the individual to affirm OR challenge the TikTok-driven self diagnosis?


As someone who doesn't live in USA, it's really disturbing the amount of mental health issues children and teenagers have in the USA. This seems abnormally common.


Tiktok aside, if people use online "collaborative filtering" platform of mental health problems, what's the pros and cons?


Videos in general are really difficult to learn from, in my experience. I started learning infosec when bandwidth was scarce snd you'd avoid clicking video heavy links if for no other reason than the risk your computer would hang.

You can watch a video, paired with written material, but in my experience the best way to learn is assigned readings and/or exercises, then circling back to discuss them with a subject matter expert if you truly don't understand how to perform the attack or math problem or whatever.

I don't have a Tik Tok, but I've used enough social media to say I don't think I'd want my kids getting their mental health information from there.

Now, if an existing institution uses Tik Tok or Facebook or Myspace or whatever to share their content, that's one thing, but the combination of "new network" with "new content creator" where neither side seems to care about the health of society as a whole... creates problems IMO.

(Then again, the same assholes who used to wander around Scott Township every Halloween handing out fifty cent pieces to children still haven't threat modeled basic things like "if your plan for a cyberpunk future was to run away in a submarine like the president from 24, you didn't social engineer the science center well enough, they'll tell you it doesn't work anymore")

Anyways, thanks for the link OP -- enjoy spooky season!!


Teens don't watch Dr. Phil anymore and this is the result.




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