You do realize there is a huge gulf between being an "experiment" and the narrow rubrics of assorted "specialists", right? Like seemingly your own situation!
I do understand how you have to internalize the system's reasoning if you want to get any medical care out of it. But you also have to step back and look at its constructive result - in yours it's seemingly straight up denying you the medical care you need. My own experience tells me that you should have never told the system you stopped taking the drug, which would have been less suboptimal than the situation you now find yourself in.
Also that someone is seemingly supposed to just know to seek out a research facility, rather than being referred to one in the normal course of care, is a blatant failing of the medical industry no matter how you want to spin it.
If I don't have any unique condition that I know of, besides wanting to bidirectionally converse with a doctor as two intelligent people, is there yet another type of place I should seek out?
Or a specific situation - if I'd like to consider a drug I've heard about that I think could benefit my own medical situation (lets say metformin or provigil), where and how can I have this conversation with a doctor, getting their informed opinion rather than being summarily shot down because I dared to think about my own healthcare in specific terms?
It seems like the only way to go about that under the current system would be to make the initial decision to start taking something fully on my own, obtain it from the grey market, and then just tell the doctor what I am doing and force them to work in that context rather than allow them to gatekeep the hypothetical.
I'd love to exchange thoughts with you on this. You've pretty much written down what I've been thinking for a while now and intend to do. If you're up for it I'll give you my email.
> If I don't have any unique condition that I know of, besides wanting to bidirectionally converse with a doctor as two intelligent people, is there yet another type of place I should seek out?
I'm thinking of looking for a good doctor who will be willing to do just that for an upfront $1k a day or so, possibly in India. Working as a team, spending the full 8 hours together, thinking, researching, looking stuff up - someone who seems it as a challenge.
> It seems like the only way to go about that under the current system would be to make the initial decision to start taking something fully on my own, obtain it from the grey market, and then just tell the doctor what I am doing and force them to work in that context rather than allow them to gatekeep the hypothetical.
I do understand how you have to internalize the system's reasoning if you want to get any medical care out of it. But you also have to step back and look at its constructive result - in yours it's seemingly straight up denying you the medical care you need. My own experience tells me that you should have never told the system you stopped taking the drug, which would have been less suboptimal than the situation you now find yourself in.
Also that someone is seemingly supposed to just know to seek out a research facility, rather than being referred to one in the normal course of care, is a blatant failing of the medical industry no matter how you want to spin it.
If I don't have any unique condition that I know of, besides wanting to bidirectionally converse with a doctor as two intelligent people, is there yet another type of place I should seek out?
Or a specific situation - if I'd like to consider a drug I've heard about that I think could benefit my own medical situation (lets say metformin or provigil), where and how can I have this conversation with a doctor, getting their informed opinion rather than being summarily shot down because I dared to think about my own healthcare in specific terms?
It seems like the only way to go about that under the current system would be to make the initial decision to start taking something fully on my own, obtain it from the grey market, and then just tell the doctor what I am doing and force them to work in that context rather than allow them to gatekeep the hypothetical.